Posts Tagged With: survival

My Complicated Relationship with Survival: Twenty Years with HIV

I have a complicated relationship with survival.

That relationship involves monumental loss, and deep love. It is the space where heartbreak and resilience live. The very space that makes me me in so many ways.

Twenty years ago today I was a 28-year-old who was far too young and far too old at the same time. On July 15, 1995, I was sitting in the health department in St. John’s, Newfoundland, listening to a doctor I had never met coldly tell me that I was HIV+. This was a time just before effective medication. HIV was still a death sentence. I knew that, deep in my bones, because I had buried friends and acquaintances and would bury many more over the years to come. We were all too young and too old at the same time. Continue reading

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Categories: Compassion | Tags: , , , , , | 1 Comment

What Being Sober for Exactly Half My Life has Taught Me

Teo

On Thursday January 2nd I passed the milestone of being in recovery for half my life: 23 of my 46 years. I have now been sober three times longer than I drank. Along the way I have learned a great many things (often the hard way). Here is what is coming forward at the moment, but is by no means a complete list.

Nothing is linear: not healing, not harm, nothing. Shedding damage from trauma, including addiction, has not been a process of going from point A to point B. It has been an ever-meandering route that seems to invariably circle back upon itself (often accompanied by my sentiments of “Fuck, I thought I dealt with this already!”). In early recovery everything was new and often magical; hard, but it still felt like I was getting somewhere… Then it seemed like growth came more slowly or not at all. Over the years I have found that to be the way healing unfolds. I honestly don’t know if there is a destination. What I know is that I am at home in my skin more than I thought would ever be possible. I’m wary of seeing myself as a “work in progress.” I distrust the self-help gurus who push “self-improvement.” Healing for me has come from being curious about who is actually here rather than focusing on “what I could become.” Continue reading

Categories: Compassion, Faith, Identity | Tags: , , , , , , , , , , , , , , , , , , , , , | 6 Comments

Some Kinda Faggot

Teo

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Square Talisman

Teo

Please read Preface to Square Talisman to provide context for this post.

There are times that I don’t even know how to articulate the pressurized environment that I live in. That it—all of it—is soul crushingly invisible. I often feel like I don’t even know how to begin the conversation. It shows up starkly in hospital/medical settings because I feel like everyone around me is having this experience of an ordinary day and it’s not an ordinary day for me and I’m not an ordinary person and I’m not having an ordinary internal conversation and there’s no room to bring me forward, so I go from being big to small—to big—to small—to invisible, and finally, to not there.

What does it mean to survive the unsurvivable?

Because I feel that’s what I’ve done—every step of the way I’ve survived the unsurvivable. To be born completely without a road map to my own body, to my own mind, to my own soul. To hold in my palm as a little kid a square solid object, but to have everyone else tell me it was round. Adult after adult told me “no, round is your shape.” And I knew—knew what was in my hand, as solid as anything else in my hand could be—THIS thing is square. But I pocketed that square because to show it… they might take it away. Fuck, they might take me away. So I put the square piece in my pocket. And over the years it got worn. From the grasping and the fist-tightening and the finger-rubbing. This talisman I carry in my pocket, my square, in a world that keeps trying to push round on me. If I were to pull that square out into the light of day it would shine. It would shine from the ritual rubbing and rocking—the need to remember that what I feel is real, that what I see is real, that what they tell me is not real. That I can survive the unsurvivable.

I brought it forward at the moment that I and the square might not survive anyway. And time and darkness had made it a tiny thing, but still a solid thing. A loved, solid talisman that I exist. That I survived the unsurvivable.

And I’ve survived the unsurvivable more times than I can tell you. I’m still here. But my still here seems like such a tenuous thing sometimes. A thing that I don’t have a lot of control over. A thing that far too many people seem to have a vote on in addition to myself.  I crave the dissolution of a voting block that I don’t understand or support or want.

I sat in the doctor’s office today having that rational conversation that feels so irrational to me. About what my body needs versus what the institution says I need and about how the choices always feel like the lesser of two evils of which both are life threatening. And it’s on these days that I feel like I might rub that square into nothingness, as I rock back and forth, desperate yet again to find a way to survive the unsurvivable.

Categories: Compassion, Identity | Tags: , , , , | 1 Comment

Cultivating Reverance

Teo

I’ve been pondering since you read to me from Woodruff’s book on Reverence today.  Not much else to do during a hurricane, I suppose.

The difference between Plato’s belief that reverence was not a stand alone virtue (rather, it came about through practicing other virtues, primarily justice) and Thucydides (who in contrast prizes reverence as a cardinal virtue to guard against human arrogance) felt important the minute I heard you read those words.

Cultivating reverence as a means of counteracting human arrogance resonated with me. How do I/we work for social justice without sliding into self-righteousness, arrogance, bitterness, rage and/or hopelessness? After all, there is so much to be done, so many people marginalized in very real and harmful ways. I have been challenged as naive for believing and teaching that the most sustainable way to create change is by cultivating a practice of self-care that grounds us in compassion and interconnectedness, in purpose and in the larger perspective. My first introduction to activism and leadership through this lens was with Off the Mat into the World. I began to understand that I kept getting called to a spiritual practice as the foundation from which I could seek social justice, but articulating exactly what was happening has eluded me more often than not. It struck me today—cultivating reverence—that’s the thread that weaves through my spiritual practice. Reverence as a “profound adoring awed respect.”

I come back to my mat, my connection with the divine, to mindfulness, to spiritual conversations—all as ways of opening my heart. Being a target, fighting for survival, bearing witness to others fighting much harder battles all serve to tighten my body and armor my heart. Engaging in activism from that tightened, hardened place led me down a path of anger and resentment. It brought me to the conclusion that I knew THE way forward and anyone in my way was the enemy; seeing social justice as a battle in general where I could easily tell those on the side of good or evil.

I need an actual practice where I can cultivate reverence. A practice that calls me back to my higher self over and over again. A practice that cracks my heart open wide. A practice that allows my heart to break because of what I have experienced and what I witness in the world. A practice that opens my heart time and time again to joy, to feeling loved and cared for without question. A practice that lets me find my strength through softness and flexibility and that lets me know I can be wrong without shattering.

Cultivating reverence need not be tied to any religious or spiritual belief. It’s an intentional practice that we put in place as a touchstone serving as a reminder of our higher selves and our connection to all beings everywhere. A practice where we make time to heal, to breathe. Where our bodies and our minds find comfort.

Categories: Activism, Compassion, Faith, Reverance | Tags: , , , , , , , , , , | Leave a comment

Go Ahead Call Me Naive

Teo

I bear the physical and psychic scars of a life spent on the razor sharp edge of survival. I still have to play hide and seek with whole pieces of who I am long tucked away safely out of reach from whoever might be swinging at them. My brain and my body not always knowing today isn’t those yesterdays.

Say I am naive. Tell me I don’t know how it really is. What the world is really like. As if I haven’t felt their fear my body might bleed, toxic puddle between us, my soul bleeding instead—an acceptable penance. I still hear the priest who held the life preserver I might have exchanged for the razor meant for my wrists. “No, child, there is no place in heaven for your kind, I’m sorry.” In my dreams with my eyes wide open I still see the fists and the belt. Watch the parade of their agents. Hear my own whimpers. Like I don’t know what the sweat on my skin feels like as I wrestle love apart from it’s weld with violence. Go ahead, tell me how it is while out of the corner of my consciousness I hear a debate about the cost of government funded health care. You think I don’t know Paul Ryan wouldn’t spend the forty grand a year it costs to keep a queer trans man with AIDS alive? Go ahead, tell me I am naive because my anger isn’t the first thing you meet.

Then let me tell you: my faith is my rebellion. Standing ankle deep in compassion anchoring my open heart while I bear witness to my pain and yours. My radical act—choosing love and hope over my cultivated fists or sharpened tongue as agents of change. Believing I am wanted and loved by the divine is my heresy. Speak your truth, it’s ok with me. I can hear the divine over the thunder of my heartbeat simply by touching my forehead to the floor.

Call me naive audio

Alex

You’re the one who gave the lie to the idea “if you’re not angry you’re not paying attention” and showed me that love and compassion are the real signs of attentive awareness and connection to the suffering and injustice in the world. You gave me permission to be my open-hearted self, to shed the ill-fitting armor of self-righteousness. You taught me that inside every angry person—no matter how vicious and hateful—lives a scared and hurting small self.

Right before I met you I was reading about Howard Thurman and his role in bringing the practice of nonviolence to the U.S. civil rights movement. I realized that I had never understood what nonviolence was. It is so often painted as passive resistance—a lack of violence—when in reality it is anything but passive; it’s actively choosing love and compassion and practicing lovingkindness toward those who are complicit with the forces of hatred and intolerance. Practicing nonviolence doesn’t just mean refraining from acts of aggression and force, it means finding love and compassion for those who would destroy you with hate.

The universe laid out pebbles for me to follow that led me back to staking a claim for myself as a person of faith—a faith grounded in love and interconnectedness. And then I met you, and one of the first things you told me was that you believed that the energy you bring into a room is the first and foremost way to make a difference in the world. My armor cracked and I found my feet solidly on the path of love, the path leading me back to my authentic self, back to wonder and hope.

Being hopeful and loving isn’t a sign of a sheltered, charmed life. It doesn’t mean a person isn’t paying attention. Choosing a path of love, compassion, and hope in the face of struggle and injustice is far harder than taking the easy road of bitterness and anger. That’s why it takes faith. I’m so grateful to be on this path with you.

Categories: Activism, Compassion, Faith | Tags: , , , , , , , , , , , , , , , | 1 Comment

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